#chpcc2017 | pediatric palliative care needs more education around sibling supports and QoL assessments with the patients themselves
Integrating a quality of life assessment and practice support system in palliative home care
Presenter: Rick Sawatzky and Barbara McLeod
Date: October 27, 2015
Time: 2:00 - 3:00pm PST
Location: Online Webinar hosted through InspireNet
Type of Event: Online Webinar
The voices of clients and families in palliative homecare need to be represented in health care decision making; patient-reported outcome measures (PROMs) and patient-reported experiences measures (PREMs) are increasingly being used to obtain information about patients’ health care needs and quality of life concerns. This presentation will report on a new collaborative project with palliative homecare clinicians in Fraser Health Authority, which seeks to bring quality of life (QOL) concerns and health care experiences to the forefront of care by using an innovative electronic QOL Assessment and Practice Support System (QPSS). Specifically, this project seeks to find the best ways to integrate QPSS into palliative homecare and to assess whether or not QPSS improves quality of care and health outcomes for seriously ill older adults and their family caregivers.
Dr. Richard Sawatzky, RN, PhD, holds a Canada Research Chair in Patient-Reported Outcomes at Trinity Western University, is research scientist with the Centre for Health Evaluation and Outcome Sciences (CHEOS) with Providence Health Care, and is member of the board of directors of the International Society for Quality of Life Research. He leads an active program of research that focuses on the use of patient-reported outcome (PRO) instruments and quality of life assessments in various health care contexts, including those for people with chronic life-limiting illnesses. Current research activities include systematic reviews and studies regarding of PRO instruments for older adults; statistical methods for PRO measures; the use of tablet devices for quality of life assessments in palliative care; family caregiver quality of life in palliative homecare; the selection and utilization of PRO instruments in health care practice and health services decision making; nursing care delivery and practice supports for a palliative approach; educational approaches for patients with colorectal cancer; and patient-reported experiences with knee surgery.
Barbara McLeod, RN, BSN, MSN, CHPCN (C). Barbara is a clinical nurse specialist in the Fraser Health (FH) End of Life Care Program with local accountability in Burnaby and Tri-Cities and regional responsibility for the development of hospice palliative care services in FH Home Health. Barbara is strongly committed to advancing nursing practice and to improving end-of-life care by participating in nursing research and leading the integration of research findings into nursing practice. Barbara has been a co-investigator on several research studies to improve the quality of life for patients and their families at end-of-life.