Work in Progress Seminar: Measuring what’s important to the quality of life of people with life-limiting illness: The ongoing development and use of the McGill Quality of Life Questionnaire
When: Wednesday, October 25, 12:00 - 1:00pm
Where: Hurlburt Auditorium, St. Paul's Hospital, 1081 Burrard Street, Vancouver, BC.
Type of Event: This event is part of the Work in Progress series presented by CHEOS (Centre for Health Evaluation and Outcomes Sciences). For more information or to see upcoming Work in Progress talks click HERE.
Registration: This event is free and available to the general public and health care providers alike, a light lunch will be served. For those who cannot make it in person the talk will be recorded and made available at https://www.mixcloud.com/CHEOSNews/
Robin Cohen, PhD - Research Director and Full Professor, Program of Palliative Care, McGill University
Richard Sawatzky, PhD - Professor, School of Nursing, Trinity Western University, Scientist and Program Head – Patient-Reported Outcomes, CHÉOS
Can there be a good quality of life with a life-limiting illness? What special concerns are there for measuring QOL at this stage of life, and what domains need to be included? We’ll begin by briefly describing the 20-year history of the McGill Quality of Life (MQOL) Questionnaire, a person-reported outcome measure of the quality of life of people with a life-limiting illness developed with the help of St. Paul’s Hospital. It has been widely used in palliative care studies, in part because of the inclusion of the existential domain along with the more widely measured domains. We’ll then discuss our recent work to create the MQOL-Revised and MQOL-Expanded. Points for discussion include challenges, potential solutions, and valid uses of person-reported outcome measures in clinical practice and monitoring of service outcomes.