Advance Care Planning Sessions for General Public - Vancouver Island
Advance Care Planning is an important part of ensuring better End of Life Care. By becoming more knowledgeable about what to expect and what your options are as you near the end of life - you can help ensure that you receive the care you want from your health care providers.
Type of Event: Public Education Sessions for Advanced Care Planning
Registration: These events are free and available to the general public and health care providers alike.
To register for a session in Victoria or surrounding areas - view the Advanced Care Planning information in the Island Health website at http://viha.ca/advance_care_planning
To register for a session in Comox - please follow this link to Comox Valley Advance Care Planning Events.
CHPCA 2017 Conference - Expanding Our Horizons: A Palliative Approach to Care
Ottawa, Ontario. September 23 to 23, 2017
Opening Plenary - Looking Forward, Looking Back: What History Can Teach Us about the Integration of a Palliative Approach to Care
Presenter: Dr. Kelli Stajduhar
Integration of palliative approaches to care has become a central focus within the field of palliative care. But what does a palliative approach mean and how can integration happen within the context of the current health care system? Drawing on over 30 years of research and practice experience in palliative care, Dr. Stajduhar will reflect on the implications that palliative approaches to care have for the field of palliative care and remind us of why going back to our roots is more important than ever.
Workshop - Developing a volunteer navigator program to support early palliative care: would it work for you?
Presenter: Dr. Barb Pesut
In this workshop participants will have the opportunity to explore an innovative program called NCARE (navigating, connecting, accessing, resourcing, and engaging) in which hospice volunteers provide supportive services in the home for clients who are early in the palliative trajectory. In this model, hospice volunteers receive training in navigation and then conduct regular visits with clients in the home. Supportive interventions include assisting clients with making connections, identifying and accessing relevant resources, engaging with meaningful activities, and assisting with decision-making. NCARE was successfully piloted in 2015/2016 and is now being implemented in communities across Canada. Findings from these studies will be shared with participants including experiences learned through implementation and the impact on volunteers and clients. Participants will have the opportunity to work with the NCARE implementation tool-kit to better understand the potential of the program for their hospice society and community.
Participants in this workshop will meet the following objectives:
- Understand the NCARE program.
- Explore how NCARE fits with a public health and a compassionate communities approach to palliative care.
- Describe the types of services that volunteers can provide for an early palliative population in the community.
- Understand the potential impact of the NCARE program on volunteers, clients, and community.
- Weigh the potential of implementing the NCARE program within their hospice society and community
Oral Presentation - Outcome Measures for a Palliative Approach
Presenters: Dr. Richard Sawatzky and Pat Porterfield
It is imperative to integrate a palliative approach earlier on and across all contexts of care for people who have life limiting chronic conditions. However, successful integration will only be achieved if relevant outcomes are routinely evaluated. As part of the Initiative for a Palliative Approach in Nursing: Evidence and Leadership (iPANEL), we have conducted research with the purpose of identifying outcomes measures that are reflective of a palliative approach.
Oral Presentation - Shift your thinking: Knowledge translation for a palliative approach in nursing practice
Presenters: Carolyn Tayler, Della Roberts
Are you concerned about getting research evidence into practice? The Initiative for a Palliative Approach in Nursing: Evidence and Leadership (iPANEL) is a province-wide nursing research-practice partnership in British Columbia that has been collaborating on research and knowledge translation since 2011. All of our projects are based on the core value that incorporating practice wisdom throughout the research process is the best way to ensure that results are meaningful and useful to practitioners, whether they are front-line providers, leaders or administrators. In this presentation, we will walk you through how we transformed our extensive research findings into user-friendly formats to facilitate understanding and uptake. Practitioner team members were central to the development of our KT products, bringing their expertise about the best tools and language to use when trying to initiate change in health care delivery. We began with the development of guiding principles and processes, including clearly stating team member roles, core evidence, key messages, target audiences, specific KT products, timeframe and distribution plan. KT products, such as infographics and an animated video, were developed through a series of drafting and refinement stages, in collaboration with a professional designer. Distribution of final products occurred via multiple methods, including social media (websites, Twitter, Facebook, YouTube), professional networks, and targeted emails.
Poster - The impact of health system changes on the delivery of care at home
Presenter: Kelli Stajduhar
Patients’ ability to die at home is heavily dependent on the efforts of family caregivers (FCGs). Even where patients receive home care services, the likelihood of dying at home is reduced if FCGs are unable to provide care. Our team is currently conducting an intervention aimed at identifying FCG needs for support. The intervention, however, has been challenging to implement in the context of constant changes in the home care environment. We undertook a qualitative study to document the impact of health system changes on the delivery of palliative care at home. We conducted focus groups and in-depth interviews with 29 home care nurses and 9 key informants. Data were thematically analyzed to gain insight and better understanding of how these changes were impacting nursing care specifically and home care nurses abilities to care for patients and FCGs.
Findings suggest that system issues such as increasing medical and psychosocial complexity of patients and FCGs, increasing volume of home care patients, and late admission to home care and palliative care are influencing the ability to provide quality care. Organizational changes and a drive to reduce service to patients in home care, underpinned by the need for system efficiency, were also identified. Findings also suggest home care nursing practice is changing to meet these system demands in ways that are not always aligned with the core principles and philosophies of palliative care.
Exhibition Booth - iPANEL
5th International Public Health & Palliative Care Conference
Ottawa, Ontario. September 17 to 20, 2017
Workshop - The social determinants of health in life and death: research and promising practices in three Canadian cities to improve access to palliative care for structurally vulnerable people
Presenters: Dr. Kelli Stajduhar, Naheed Dosani, Simon Colgan, Sonya Jakubec
People who experience a deficit in the social determinants of health (SDOH) including inadequate housing, poverty, and racialization, as well as high rates of mental health and substance use, and stigmatization of diseases such as HIV/AIDS, are often underserved by current palliative care services. “Structurally vulnerable” people have fewer social supports, lack financial resources, adequate and ‘safe’ housing for formal care provision, and often die in places that do not meet their unique needs, alone, or in the care of workers who have limited training and support to provide quality palliative care. In this workshop we will draw on our experiences of working with structurally vulnerable people through the Palliative Education And Care for the Homeless (PEACH) program in Toronto and the newly developed, Calgary’s Allied Mobile Palliative Response Program (CAMPP), and findings from a three-year ethnographic study in Victoria examining access to palliative care for structurally vulnerable people.
Responses to this public health issue require community-led, participatory partnerships. In this interactive workshop, we will engage participants in conversations related to promising practices to improve access to high quality palliative care for individuals experiencing structural vulnerabilities, and encourage (re)conceptualizations and (re)orientation of home, family, and caregiving. We will: (1) synthesize research regarding care for structurally vulnerable populations in need of palliative care; (2) discuss promising practices for improving access to care for these populations; and (3) work with participants to apply these promising practices in diverse case examples.
Oral Papers - Volunteer navigation partnerships: building community capacity for early palliative care
Presenter: Dr. Barb Pesut
Hospice volunteers have a long and distinguished tradition of providing care for clients dying in the community. With developments in a public health approach to palliative care, many hospice societies are considering how they can engage their communities more meaningfully with the view to making palliative care more accessible. The purpose of this presentation is to present the findings of an innovative program called NCARE (navigating, connecting, accessing, resourcing, engaging) which was designed to increase hospice engagement toward a compassionate community approach to care. Volunteers who were trained in navigation provided supportive services in the home for clients living with advanced chronic illness. Interventions included assisting clients with making supportive connections, identifying and accessing relevant resources, engaging with meaningful activities, and assisting with decision-making. Volunteers were partnered with a nurse navigator who provided oversight and mentoring. An advisory committee made up of stakeholders from health care, social care, and local government provided direction for the project. NCARE was successfully piloted in 2015/2016 and is now being implemented in communities across Canada. Clients who have taken part in the program indicate that it improves their quality of life; volunteers have described the role as satisfying and meaningful. Overall, the intervention has the potential to contribute to the sense of belonging, safety, and support that characterizes the compassionate community.
Oral Paper - Wired for living: developing a palliative approach to care for young adults
Presenters: Karen Cook, Kim Bergeron
A growing population of young adults (YAs) with life-limiting conditions require a developmentally appropriate approach to care. Like all YAs, they are wired for living and aspire to attend post-secondary education, have meaningful vocation or work, and live independently. However, their developmental goals may collide with changing symptoms or end of life. Further, adult services are not designed to address their developmental, social, education and financial needs.
YAs with life-limiting conditions will benefit from a public health palliative approach to care, that matches their chronic disease trajectories of a series of declining plateaus over a period of months to years, punctuated by unpredictable periodic crises. A palliative approach to care for YAs facilitates collaborative partnerships across community and health agencies to ensure timely and seamless resources to meet their needs. These resources will support their quest to maximize their quality of life and opportunities in an abbreviated time frame. Currently, there are few programs that recognize the unique palliative needs of YAs.
Successes, challenges and results of our research, Bridging the Gap: Developing a Palliative Approach to Care for Young Adults will be described. We used a three-phase online patient engagement strategy to hear the voice of YAs with life limiting conditions, their families, and health and community professionals. This research culminated in a prioritized plan to enhance well-being, improve access to services and funding, build relationships, and develop a supportive community. Opportunities and barriers for research engagement with the YAs, their parents, and community and health providers will also be presented.